Clinical Database CRANE

Location

London

Description

For the continued financial support of clinical databases for British Society of Blood and Marrow Transplantation and Cellular Therapy Cleft Registry and Audit Network (CRANE)

Total Quantity or Scope

The Cleft Registry and Audit Network (CRANE) Database collects information on all children born with a cleft lip and / or palate (including those with non-cleft velo-pharyngeal insufficiency) in England, Wales and Northern Ireland.The CRANE Database has two aims:• To register birth, demographic and epidemiological data related to all children born in England, Wales and Northern Ireland with the congenital abnormality of clefting of the lip and / or palate.• To record the treatment of children and adults with clefts of the lip and / or palate and the outcome of such treatment. This data will provide the basis for the national audit of cleft care.In line with these broad aims, the CRANE Database has the following objectives:• To provide an up-to-date register of all cleft patients.• To monitor frequency and incidence of clefting.• To audit and report on quality of care for patients with clefts and thus promoting high standards in clinical management.• To trial and introduce (with CDG oversight and consent) an outlier policy for the registration and audit outcome reporting functions of CRANE.• To support research and focused quality improvement studies.• To work with and receive advice from the Craniofacial Society and its members to improve the delivery of cleft care.• To send data to NHS England SSQD for Quality Dashboard production on Quarterly basis.In addition, the CRANE Database endeavors to strengthen its links with other congenital abnormalities and cleft registries and databases in other countries.

Award Detail

Award Criteria

CPV Codes

• 85100000 - Health services

Indicators

• Award on basis of price.

Legal Justification

Reg 32(2)(b)(ii)